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Wednesday, September 1, 2010

September is Craniofacial Acceptance Month

My Co-worker and his family here in Arkansas recently went through a very trying time with there youngest daughter Ellie.  Before she was born they found out that she had a cleft lip and palate.  Their main concern was they didn't know exactly how much of her lip and palate would be affected until after she was born. They were very relieved after Ellie's birth to find a Doctor in New York who specialized in the a special procedure called Nasoalveolar Molding (NAM).  With this treatment Ellie was able to forgo many painful procedures.  They were able to cut it down to just one. 

Her dad had the same defect when he was a child and went through many painful procedures to repair his lip, palate, nose, gums and teeth.  He not only understands the children's pain and suffering, but now he understands the parents pain and suffering for their child as well. Trying to figure out where the money is coming from for the extensive traveling in order to get the procedure done is another surmounting worry on top of everything else.
For this reason the family has started a non profit, charitable organization called Cleft Care of Arkansas - Caring Beyond the Smile.   The Organization's primary focus is on providing travel funds for children born with cleft lips/palates seeking NAM. This procedure is not offered in Arkansas at this time, but Cleft Care of Arkansas' goal is to one day have this treatment offered locally. They are currently sponsoring two families and any support would be greatly appreciated.

Check out Cleft Care of Arkansas website to see before and after pictures of their beautiful baby girl Ellie and to find out more how you can help.

3 Of Your Wonderful Comments:

Jennifer said...

This is so wonderful! I run a non profit, family run surgical team that for the past 23 years, has traveled to Latin America and Zimbabwe, Africa performing more than 3,000 free smiles to children need cleft surgeries.. I cannot tell you how wonderful it is to help a family with their desperate need to get help in making a child visible again.. keep up the good work!

Jennifer said...

Victoria's Voice said...

Thank you Jennifer. You all really amaze me with all the wonderful things you bring to these kids. Thank you for the kind comments. I will pass them along to Clark and his family along with the link to

Have a safe Labor Day!


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